The Impact
We tracked PFA ideas and recommendations to see whether they were used or not for the study and why. The impact rates of the suggestions provided by PFAs for years 1 - 4 are 88, 85, 100, and 93%.
In total over the 4 years, 91% of the ideas provided by PFAs impacted the study.
Over the 4 years, PFAs participated in 259 activities, attended 198 meetings with researchers, and spent 255 hours in meetings (almost 11 days!). 76% of the meetings were attended by PFAs and about 70% of PFAs invited to meetings were able to attend.
Past presentations, posters, & Other Materials
Made for Each Other - How Practice Based Research Networks are Engaging Clinicians
Monitoring, Measuring, and Improving Patient and Family Engagement in Research: the Experience of the Meta-LARC ACP Trial @ NAPCRG 2022 PBRN Conference
Monitoring, Measuring, and Improving Patient and Family Engagement in Research: the Experience of the Meta-LARC ACP Trial @ 2022 PCORI Annual Meeting
upcoming presentations, posters, & other materials
More coming soon!