ACP Allies
INSTITUTE FOR PATIENT-AND FAMILY-CENTERED CARE
Creating Sustainable Partnerships with Patients and Families in Research
TRANSFORMING HEALTH CARE THROUGH PARTNERSHIPS
Doing engagement right in research requires skills and strategies that have not always been a part of training for researchers. The Institute for Patient- and Family-Centered Care (IPFCC) have been advisers and coaches for the Meta-LARC ACP Trial. We have relied on their advice and their toolbox for engagement in research. They have resources, an online learning community, and events that support engagement in all aspects of healthcare, not just research.
THE CONVERSATION PROJECT
Dedicated to helping people talk about their wishes for end-of-life care
HAVE YOU HAD THE CONVERSATION?
Started in 2010 by writer Ellen Goodman, the Conversation Project is a public engagement initiative with the goal “to have every person’s wishes for end-of-life care expressed and respected.” The Project has developed Starter Kits to help people have conversations with family members, friends, or other loved ones about your or their wishes. They are free and available in several languages. They also have a guide for how patients can start the conversation with doctors or other health care professionals.
ADVANCE CARE PLANNING INTERNATIONAL (ACP-I)
Promoting the universal adoption of Advance Care Planning and patient-centered care
LEARN ABOUT ACP EFFORTS AROUND THE GLOBE
ACP-i is a professional membership organization. Members are from a variety of backgrounds: specialist clinicians, general practitioners, nurses, social workers, allied health occupations, lawyers, researchers and policy makers. ACP-i organizes a conference every two years and is currently building a new website that will have resources for non-members as well. Their aims are to spread best practices, support development of country-specific programs, and provide a way to share experiences and expertise.
RESPECTING CHOICES
Internationally recognized system for person-centered decision making
A SYSTEM FOR PERSON-CENTERED DECISION MAKING THAT TRANSFORMS HEALTHCARE
Respecting Choices aims to assist all levels, from health care systems to individuals, in transforming healthcare so it aligns with individual’s goals and values. They offer training, consultation services, educational materials and decision aids.
INSTITUTE FOR HEALTHCARE IMPROVEMENT
IHI Topics: What Matters
DO YOU ASK “WHAT MATTERS TO YOU?”
The Institute for Healthcare Improvement topic page on What Matters includes links to articles, blog posts, and videos that focus on the idea that asking patients, “What matters to you?” can impact the quality, safety, and joy of the health care workforce. There is also information on “What Matters to You” Day, occurring in June each year.